Journal of Educational Innovation Research 2016, Vol. 26, No. 2, pp DOI: ICF-CY :,,, * Analysis

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1 Journal of Educational Innovation Research 2016, Vol. 26, No. 2, pp DOI: ICF-CY :,,, * Analysis of Research Trends in ICF-CY Literatures for its application on Special Education: North America, Europe, Japan, and South Korea Purpose: We conducted a systematic literature review to analyze research articles with regard to (a) the number of research articles published by years (b) primary research field, (c) participants, (d) components addressed involved in the analyzed literatures, (e) implementation issues and compared them according to four regions of origin of papers. Methods: 85 ICF-CY articles published between 2007 and 2016 in domestic and international journal, were selected and analyzed. Results: In Europe and North America, the majority of ICF-CY related studies were conducted in psychology and medical fields. However, in South Korea and Japan, ICF-CY related studies were conducted in special education. In regard to the types of participants, articles from Europe, North American, and South Korea addressed ICF-CY for individuals with physical disability. In the articles from Japan, however, focused on autism spectrum disorder. Additionally, the majority of the articles across all four regions focused on activities and participation, body functions out of major ICF-CY components. In terms of ICF-CY implementations, more articles used ICF-CY as instruments to categorize disabilities than as ICF-CY conceptual articles. Conclusion: Future research should address ICF-CY for more various types of disabilities and ICF-CY related studies needs to identify how to use ICF-CY in other fields such as medical, psychology, and social welfare. Key words : ICF-CY, Activities and Participation, Special Education, Practical Application of ICF-CY * 2015 (NRF-2015S1A5A2A ). Corresponding Author: Park, Jae-Kook, Pusan University, Dept. of Special Education, Jangjeon 2-dong, Geumjeong-gu, Busan, Korea, pjk006@daum.net

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3 . 2 (1) (Functioning and Disability), (2) (Contextual Factors), (a) (Body Functions and Structures) (b) (Activities and Participation). (c) (Environmental Factors) (d) (Personal Factors). ICF-CY,,, (Jelsma, 2009). (static) DSM-IV-TR (Simeonsson et al., 2003). ICF-CY (Cieza et al., 2004). ICF-CY (Jeglinsky, Salminenb, Carlberg, & Autti-Ramo, 2012; Field & Livingstone, 2013). ICF-CY ( : ) (Gan, Tung, Yeh, & Wang, 2013; Gleason & Coster, 2012; Thomas-Stonell, Oddson, Robertson, & Rosenbaum, 2009)., ICF-CY (,,, 2014;, 2012;,, 2012;,,, 2015)., ICF-CY,,. (2012) ICF-CY. ICF-CY 2007 ICF-CY (,,, 2007;, 2007;, 2008; Polo, Pradal, Bortolot, Buffoni, & Martinuzzi, 2009). ICF-CY (, 2011; Castro, Ferreira, Dababnah, & Pinto, 2013; Schipper et al., 2016). ICF-CY ICF Core Sets (Schiariti & Mâsse, 2014) ICF Core Sets (Yen et al., 2014). ICF-CY 2012 ICF-CY. ICF-CY IEP (,, 2012), ICF-CY (,,, 2013), ICF-CY (, 2012;,,, 2015). ICF-CY. ICF-CY (,,, 2014).

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9 ICF-CY.,, 10 (23%), 8 (38%), 12 (57%). ( :, ) 13 (30%), 5 (24%). 6 (14%) 3. 5 (24%) (19%) 2.,,,,, 1. 9 (43%), 6 (14%), 1 (5%), 0. ICF-CY < -3>. n % n % n % n % 10 23% 8 38% 2 10% 12 57% 6 14% 1 5% 4 19% 0 0% 1 2% 5 24% 0 0% 0 0% 1 2% 2 10% 0 0% 5 24% 2 5% 0 0% 0 0% 0 0% 2 5% 0 0% 0 0% 0 0% 1 2% 0 0% 0 0% 0 0% 1 2% 0 0% 0 0% 2 10% 0 0% 0 0% 1 5% 0 0% 0 0% 0 0% 0 0% 0 0% 13 30% 4 19% 5 24% 2 10% 6 14% 1 5% 9 43% 0 0% ICF-CY. 32 (41%), 16 (34%), 12 (39%), 13 (38%). 19

10 (24%), 11 (23%), 8 (26%), 10 (29%). 4 (5%), 4 (9%), 1 (3%), 2 (6%). < -4>. n % n % n % n % 9 11% 9 19% 5 16% 3 9% 19 24% 11 23% 8 26% 10 29% 32 41% 16 34% 12 39% 13 38% 15 19% 7 15% 5 16% 6 18% 4 5% 4 9% 1 3% 2 6%,,,, 4.,,. ICF-CY, 6 (18%), 1 (16%), 9 (45%), 2 (13%). 27 (82%), 16 (94%), 11 (55%), 13 (87%). < -5>. n % n % n % n % 6 18% 1 6% 9 45% 2 13% 27 82% 16 94% 11 55% 13 87%

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15 ,, ICF-CY., (2015). (ICF) (2002~2014 ) (2002) ,, (2013).. (3), ,, (2014). ICF ICF-CY. (2), (2012). ICF-CY. (4), , (2012). ICF-CY IEP. (3), ,, (2015). ICF-CY - -. (2), ,, (2007). --ICF-CY ( ). 体 , (2008). ICF ICF-CY ICF ICF-CY WHO Adolfsson, M., Malmqvist, J., Pless, M., & Granlund, M. (2011). Identifying child functioning from an ICF-CY perspective: Everyday life situations explored in measures of participation. Disability and Rehabilitation, 33, doi: / Castro, S., Ferreira, T., Dababnah, S., & Pinto, A. I. (2013). Linking autism measures with the ICF-CY: Functionality beyond the borders of diagnosis and interrater agreement issues. Developmental Neurorehabilitation, 16(5), doi: / Cieza, A., Ewert, T., Ustün, T. B., Chatterji, S., Kostanjsek, N., & Stucki, G. (2004). Development of ICF Core Sets for patients with chronic conditions. Journal of Rehabilitation Medicine, 44, doi: / Gan, S. M., Tung, L. C., Yeh, C. Y., & Wang, C. H. (2013). ICF-CY based assessment tool for children

16 with autism. Disability and Rehabilitation, 35(8), doi: / Gleason, K., & Coster, W. (2012). An ICF-CY-based content analysis of the Vineland Adaptive Behavior Scales-II. Journal of Intellectual and Developmental Disability, 37(4), doi:0.3109/ Jeglinsky, I., Salminenb, A. L., Carlberg, E. B., & Autti-Ramo, I. (2012). Rehabilitation planning for children and adolescents with cerebral palsy. Journal of Pediatric Rehabilitation Medicine: An Interdisciplinary Approach, 5, doi: /prm Jelsma, J. (2009). Use of the International Classification of Functioning, Disability and Health: A literature survey. Journal of Rehabilitation Medicine, 41, doi: / Polo, G. E., Pradal, M., Bortolot, S., Buffoni, M., & Martinuzzi, A. (2009). Children with disability at school: the application of ICF-CY in the Veneto region. Disability and Rehabilitation, 31(S1), S67-S73. doi: / Schiariti, V., & Mâsse, L. C. (2014). Identifying relevant areas of functioning in children and youth with Cerebral Palsy using the ICF-CY coding system: From whose perspective? European Journal of Paediatric Neurology, 18, doi: /j.ejpn Schipper, E. D., Mahdi, S., Vries, P. D., Granlund, M., Holtmann, M., Karande, S., Almodayfer, O., Shulman, C., Tonge, B., Wong, V., Zwaigenbaum, L., & Bölte, S. (2016). Functioning and disability in autism spectrum disorder: A worldwide survey of experts. Autism Research, doi: /aur Simeonsson, R. J. (2009). ICF-CY: A universal tool for documentation of disability. Journal of Policy and Practice in Intellectual Disabilities, 6, Simeonsson, R. J., Leonardi, M., Bjorck-Akesson, E., Hollenweger, J., & Lollar, D. (2003). Applying the international classification of functioning disability and health to measure of childhood disability. Disability and Rehabilitation, 25, doi: / Simeonsson, R. J., Scarborough, A. A., & Hebbeler, K. M. (2006). ICF and ICD codes provide a standard language of disability in young children. Journal of Clinical Epidemiology, 59, doi: /j.jclinepi Thomas-Stonell, N. L., Oddson, B., Robertson, B., & Rosenbaum, P. (2009). Development of the FOCUS (Focus on the Outcomes of Communication Under Six), a communication outcome measure for preschool children. Developmental Medicine and Child Neurology, 52, doi: / j x. World Health Organization (2007). International Classification of Functioning, Disability and Health Children and Youth version (ICF-CY). Geneva: WHO.

17 World Health Organization (2001). International Classification of Functioning, Disability and Health. Geneva: WHO. Yen, T. H., Liou, T. H., Chang, K. H., Wu, N. N., Chou, L. C., & Chen, H. C. (2014). Systematic review of ICF core set from 2001 to Disability and Rehabilitation, 36(3), doi: /

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20 , (2008). ICF ICF-CY ICF ICF-CY WHO (2010). ICF-CY ,,,,, (2010). ICF( ) VI : ICF-CY. (5), (2011). ICF/ICF-CY (2). 体 Angsupaisal, M., Maathuis, C. G. B., & Hadders-Algra, M. (2015). Adaptive seating systems in children with severe cerebral palsy across International Classification of Functioning, Disability and Health for Children and Youth version domains: A systematic review. Developmental Medicine and Child Neurology, 57, Adolfsson, M., Granlund, M., & Pless, M. (2012). Professionals' views of children's everyday life situations and the relation to participation. Disability and Rehabilitation, 34(7), Axelsson, A. K., Granlund, M., & Wilder, J. (2013). Engagement in family activities: a quantitative, comparative study of children with profound intellectual and multiple disabilities and children with typical development. Child: care, health and development, 39, Adolfsson, M., Malmqvist, J., Pless, M., & Granlund, M. (2011). Identifying child functioning from an ICF-CY perspective: Everyday life situations explored in measures of participation. Disability and Rehabilitation, 33, Adolfsson, M. (2012). Applying the ICF-CY to identify children s everyday life situations: A step towards participation-focused code sets. International Journal of Social Welfare, 22, Anmyr, L., Olsson, M., Larson, K., & Freijd, A. (2011). Children with hearing impairment Living with cochlear implants or hearing aids. International Journal of Pediatric Otorhinolaryngology, 75, Björck-Åkessön, E., Wilder, J., Granlund, M., Pless, M., Simeonsson, R., Adolfsson, M., Almqvist, L., Augustine, L., Klang, N., & Lillvist, A. (2010). The International Classification of Functioning, Disability and Health and the version for children and youth as a tool in child habilitation/early childhood intervention feasibility and usefulness as a common language and frame of reference for practice. Disability and Rehabilitation, 32(S1), S125-S138.

21 Bölte, S., Schipper, E. D., Robison, J. E., Wong, V. C. N., Selb, M., Singhal, N., Vries, P. J., & Zwaigenbaum, L. (2013). Classification of functioning and impairment: The development of ICF Core Sets for Autism Spectrum Disorder. Autism Research, 7, Berg, K. L., Shiu, C. H., Msall, M. E., & Acharya, K. (2015). Victimization and restricted participation among young people with disabilities in the US child welfare system. Developmental Medicine and Child Neurology, 57, Ciccia, A. H., & Threats, T. (2015). Role of contextual factors in the rehabilitation of adolescent survivors of traumatic brain injury: Emerging concepts identified through modified narrative review. Language and Communication Disorder, 50, Carey, H., & Long, T. (2012). The pediatric physical therapist s role in promoting and measuring Participation in Children with disabilities. Pediatric Physical Therapy, 24, Castro, S., Ferreira, T., Dababnah, S., & Pinto, A. I. (2013). Linking autism measures with the ICF-CY: Functionality beyond the borders of diagnosis and interrater agreement issues. Developmental Neurorehabilitation, 16(5), Christerson, S., & Strömberg, B. (2010). Stroke in Swedish children II: Long-term outcome. Acta Paediatrica, 99, Field, D., & Livingstone, R. (2013). Clinical tools that measure sitting posture, seated postural control or functional abilities in children with motor impairments: A systematic review. Clinical Rehabilitation, 27(11), Granlund, M. (2013). Participation challenges in conceptualization, measurement and intervention. Child: care, health and development, 39, Gleason, K., & Coster, W. (2012). An ICF-CY-based content analysis of the Vineland Adaptive Behavior Scales-II. Journal of Intellectual and Developmental Disability, 37(4), Hollenweger, J. (2010). MHADIE s matrix to analyse the functioning of education systems. Disability and Rehabilitation, 32(S1), S116-S124. Hollenweger, J. (2013). Developing applications of the ICF in education systems: addressing issues of knowledge creation, management and transfer. Disability and Rehabilitation, 35, Ibragimova, N. K., Pless, M., Adolfsson, M., Granlund, M., & Björck-Åkesson, E. (2011). Using content analysis to link TEXTS ON assessment and intervention to the International Classification of Functioning, Disability and Health Version for Children and Youth (ICF-CY). Journal of Rehabilitation Medicine, 43, Janeslatt, G., Granlund, M., Kottorp, A., & Almqvist, L. (2010). Patterns of time processing ability in children with and without developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 23,

22 Jeglinsky, I., Salminenb, A. L., Carlberg, E. B., & Autti-Ramo, I. (2012). Rehabilitation planning for children and adolescents with cerebral palsy. Journal of Pediatric Rehabilitation Medicine: An Interdisciplinary Approach, 5, Ketelaar, M., Kruijsen, A., Verschuren, O., Jongmans, M. J., Gorter, J. W., Verheijden, J., Reinders-Messelink, H. A., & Lindeman, E. (2010). LEARN 2 MOVE 2-3: a randomized controlled trial on the efficacy of child-focused intervention and context-focused intervention in preschool children with cerebral palsy. Pediatrics, 10, Koutsogeorgou, E., Quintas, R., Raggi, A., Bucciarelli, P., Cerniauskaite, M., & Leonardi, M. (2012). Linking COURAGE in Europe Built Environment instrument to the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY). Maturitas 73, Kruijsen-Terpstra, A. J. A., Ketelaar, M., Verschuren, O., Gorter, J. W., Vos, R. C., Verheijden, J., Jongman, M. J., & Visser-Meily, A. (2015). Efficacy of three therapy approaches in preschool children with cerebral palsy: A randomized controlled trial. Developmental Medicine and Child Neurology, 58, 1-9. Lee, A. M. (2011). Using the ICF-CY to organise characteristics of children s functioning. Disability and Rehabilitation, 33(7), Maxwell, G., Augustine, L., & Granlund, M. (2012). Does thinking and doing the same thing amount to involved participation? Empirical explorations for finding a measure of intensity for a third ICF-CY qualifier. Developmental Neurorehabilitation, 15(4), McCormack, J., Harrison, L. J., McLeod, S., & McAllister, L. (2011). A nationally representative study of the association between communication impairment at 4 5 years and children s life activities at 7 9 Years. Journal of Speech, Language, and Hearing Research, 54, McDougall, J., Bedell, G., & Wright, V. (2013). The youth report version of the Child and Adolescent Scale of Participation (CASP): Assessment of psychometric properties and comparison with parent report. Child: care, health and development, 39, Meucci, P., Leonardi, M., Sala, M., Martinuzzi, A., Russo, E., Buffoni, M., Fusaro, G., & Raggi, A. (2014). A survey on feasibility of ICF-CY use to describe persisting difficulties in executing tasks and activities of children and adolescent with disability in Italy. Disability and Health Journal, 7, Meucci, P., Leonard, M., Zibordi, F., & Nardocci, N. (2009). Measuring participation in children with Gilles de la Tourette syndrome: A pilot study with ICF-CY. Disability and Rehabilitation, 31(S1), S116-S120. Öhrvall, A. M., Krumlinde-Sundholm, L., & Eliasson, A. C. (2013). Exploration of the relationship between the Manual Ability Classification System and hand-function measures of capacity and performance.

23 Disability and Rehabilitation, 35(11), Pless, M., & Granlund, M. (2012). Implementation of the International Classification of Functioning, Disability and Health (ICF) and the ICF Children and Youth Version (ICF-CY) within the context of augmentative and alternative communication. Augmentative and Alternative Communication, 28(1), Polo, G. E., Pradal, M., Bortolot, S., Buffoni, M., & Martinuzzi, A. (2009). Children with disability at school: the application of ICF-CY in the Veneto region. Disability and Rehabilitation, 31(S1), S67-S73. Petersson, C., Simeonsson, R. J., Enskar, K., & Huus, K. (2013). Comparing children s self-report instruments for health-related quality of life using the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY). Health and Quality of Life Outcomes, 11, Raggia, A., Meuccia, P., Leonardia, M., Barberab, T., Villanob, A., Caputob, M. R., & Grassib, A. (2014). The development of a structured schedule for collecting ICF-CY-based information on disability in school and preschool children: An action research from Italy. International Journal of Rehabilitation Research, 37, Schiariti, V., Fayed, N., Cieza, A., Klassen, A., & O'Donnell, M. (2011). Content comparison of health-related quality of life measures for cerebral palsy based on the International Classification of Functioning. Disability and Rehabilitation, 33, Schiariti, V., Klassen, A. F., Cieza, A., Sauve, K., O Donnell, M., Armstrong, R., & Masse, L. C. (2013). Comparing contents of outcome measures in cerebral palsy using the international classification of functioning (ICF-CY): A systematic review. European Journal of Paediatric Neurology, 18, Schiariti, V., & Mâsse, L. C. (2014). Identifying relevant areas of functioning in children and youth with Cerebral Palsy using the ICF-CY coding system: From whose perspective? European Journal of Paediatric Neurology, 18, Schiariti, V., Sauve, K., Klassen, A. F., O'Donnell, M., Cieza, A., & Mâsse, L. C. (2014). 'He does not see himself as being different': the perspectives of children and caregivers on relevant areas of functioning in cerebral palsy. Developmental Medicine and Child Neurology, 56(9), Schipper, E. D., Lundequist, A., Coghill, D., Vries, P. J., Granlund, M., Holtmann, M., Jonsson, U., Karande, S., Robison, J. E., Shulman, C., Singhal, N., Tonge, B., Wong, V. C. N., Zwaigenbaum, L., & Bölte, S. (2015). Ability and disability in Autism Spectrum Disorder: A systematic literature review employing the international classification of functioning, disability and health-children and youth version. Autism Research, 8, Schipper, E. D., Mahdi, S., Vries, P. D., Granlund, M., Holtmann, M., Karande, S., Almodayfer, O.,

24 Shulman, C., Tonge, B., Wong, V., Zwaigenbaum, L., & Bölte, S. (2016). Functioning and disability in autism spectrum disorder: A worldwide survey of experts. Autism Research, Simeonsson, R. J. (2009). ICF-CY: A universal tool for documentation of disability. Journal of Policy and Practice in Intellectual Disabilities, 6, Simeonsson, R. J., Björck-Åkessön, E., & Lollar, D. J. (2012). Communication, disability, and the ICF-CY. Augmentative and Alternative Communication, 28(1), Stahl, Y., Granlund, M., Gare-Andersson, B., & Enskar, K. (2011). Mapping of children s health and development data on population level using the classification system ICF-CY. Scandinavian Journal of Public Health, 39, Steenbeek, D., Gorter, J. W., Ketelaar, M., Galama, K., & Lindeman, E. (2011). Responsiveness of Goal Attainment Scaling in comparison to two standardized measures in outcome evaluation of children with cerebral palsy. Clinical Rehabilitation, 25(12), Teverovsky, E. G., Bickel, J. O., & Feldman, H. M. (2009). Functional characteristics of children diagnosed with Childhood Apraxia of Speech. Disability and Rehabilitation, 31(2), Thomas-Stonell, N. L., Oddson, B., Robertson, B., & Rosenbaum, P. (2009). Development of the FOCUS (Focus on the Outcomes of Communication Under Six), a communication outcome measure for preschool children. Developmental Medicine and Child Neurology, 52, Thomas-Stonell, N., Oddson, B., Robertson, B., & Rosenbaum, P. (2009). Predicted and observed outcomes in preschool children following speech and language treatment: Parent and clinician perspectives. Journal of Communication Disorders, 42, Trabacca, A., Russo, L., Losito, L., Rinaldis, M. D., Moro, G., Cacudi, M., & Gennaro, L. (2012). The ICF-CY Perspective on the neurorehabilitation of cerebral palsy: A single case study. Journal of Child Neurology, 27(2), Vargus-Adams, J. N., & Martin, L. K. (2010). Domains of importance for parents, medical professionals and youth with cerebral palsy considering treatment outcomes. Child: care, health and development, 37, : / : / :

25 ICF-CY :,,, : ICF-CY (a), (b), (c), (d), (e) 4 (,,, ). : ICF-CY 85 ( : 33, : 17, : 20, : 15 ). : ICF-CY, ICF-CY.,,. 4,. 4 ICF-CY. : ICF-CY,,.

Journal of Educational Innovation Research 2018, Vol. 28, No. 4, pp DOI: ICF Core Set * A St

Journal of Educational Innovation Research 2018, Vol. 28, No. 4, pp.265-294 DOI: http://dx.doi.org/10.21024/pnuedi.28.4.201812.265 ICF Core Set A Study to Develop the ICF Core Set for Developmental Disabilities