Journal of Educational Innovation Research 2018, Vol. 28, No. 4, pp.295-318 DOI: http://dx.doi.org/10.21024/pnuedi.28.4.201812.295 * A Research Trend on the Studies related to Parents of Adults with Disabilities Purpose: The purpose of this study was to contribute to the research on parents of adults with disabilities by analyzing the research trends of parents of adults with disabilities, who are playing a unique parent role according to their child's disability and life cycle, and the parent-related variables in these studies. Method: We selected papers dealing with topics related to parents of adults with disabilities through keyword search and review of references, and then added some papers through searching contents of the journals containing two or more selected papers. Finally a total of 64 papers were confirmed as subjects of this analysis. Research trends were analyzed according to relevant variables such as year of publication, field of academic research, research methods, and research topics. In addition to that, the parents-related variables such as parent characteristics, their child s disability type and age, and the roles of parents in the studies were reviewed. Results: The number of domestic academic papers for parents of adults with disabilities has increased since 2010. Most of the papers were published in the field of education, especially in the journals of special education. Survey researches were the most common. In the social welfare and social science fields, there were many papers related to parents' related topics, while there were many papers related to their children with disabilities in the education field. In terms of research topics, a large number of studies about the demands of supports were implemented in both topics related to parents and topics on their children with disabilities. The results of the analysis of the parent-related variables showed that there were many papers on both mothers and fathers. In the studies, most of their children with disabilities were in their twenties. The advocacy and spokesperson for children with disabilities were the most common roles of their parents. Discussion & Conclusion: The research on the parents of adults with disabilities tends to be biased by each research field, so it is necessary to try various research topics such as father-directed research. Key words : Adults with Disabilities, Parents, Research Trends, Parental Role * 2015 (NRF-2015S1A5A2A03048176). Corresponding Author: Lee, Soojeoung. Uiduk University, Div. of Special Education, Donghaedaero 261, Gangdongmyeon, Gyeongju, Gyeongsangbukdo, Korea, e-mail: soojeong@uu.ac.kr
I.,.,,, (,,, 2017), (,, 2013)...., (parenting) (, 2011;, 2014)..., (, 2015;, 2014; Gray, 2006; Mu, 2006).,,, (,, 2009), (social parenting) (, 2012). (, 2017;,, 2016;,,, 2016) (,, 2015), (,, 2016;, 2015)., 2010 (,, 2013).,,. (,,, 2017;,, 2013;,, 2012). (Sematic Network Analysis),, (2017),,
.,, (,,, 2017)., (, 2015)., (Wilkler, 1981).,,...,?,?..,., ( :,,, 2015) ( :, 2016).., KISS( ) DBpia( ), ( ), e-article( ), RISS( ) 1. 1 43. 17., 2
., :,,,,,,,,,,,, 14 4. 64. 1) 2).,,,,. 2018. (, /, /, ),,,. (,, ),,,,., (, ),.,,,, 5... < -1>.
: : (,, ), (, ), (, ), (,,, ) :,,,,, : * (,,, ), ** (,,,, ) :,,, : (,,,, ), (20,,, ), :,,,, * : ** :. 30.8% 20. / ( + ) 100 96.4%..,,. 64 < -1>.
() 1 (1998) - 2 (1999) - 3 (2000) - 4 (2001) 5 (2001) -,, 6 - (2002) 7 (2002) - : 8 (2004) - (. 9, (2005) - ) 10 (2006) - 11, (2008) - 12, (2008) - 13 (2008a) ( ) - 14 (2008b) -,, 15 - (2010) 16, (2010) 17, (2010) - 18 (2010) ( ) - 19 (2011a) - 20 (2011b) - 21 (2011c) - 22, (2011) 23 (2012) -,, 24 - (2012),, 25 -, (2012) 26 (2013) - 27, (2013) -,, 28 -, (2013) 29, (2013) - 30, (2013) - 31, (2014) - 32, (2014) -,, 33 -, (2014) 34, (2014) - 35, (2014) -
( ) () 36, (2015) - : 37, (2015) -,, 38 - (2015) : 39 (2015) -,, 40 - (2015) 41, (2015) - 42 (2015) - 43, (2015) - 44 (2015) - 45, (2015) -,, 46 (2015) 47, (2016) - 48, (2016) -,, 49 - (2016),, 50 - (2016) 51, (2016) - 52, (2016) - 53, (2016),, 54 - (2016) 55, (2016) ( ) 56 (2017) - 57, (2017) - 58, (2017),, : 59 - (2017),, 60,, - (2017),, 61 - (2017),, 62 - (2018),, 63 -, (2018) 64, (2018) - < -1>.
< -1> 1998 2010 2008 0-2 2010 3-5 2015 11. 2016 9, 2017 6. < -2>. 40.6%( 26 ) (21, 32.8%), (12, 18.8%), (5, 7.8%). 23 (35.9%) 14 (21.9%), 7 (10.9%).,, 1 2. (%) 1 (1.6) 2 23 14 7 5 7 1 1 1 2 (3.1) (35.9) (21.9) (10.9) (7.8) (10.9) (1.6) (1.6) (1.6) (3.1) 26(40.6) 21(32.8) 12(18.8) 5(7.8) 64 (100.0) < -2>. < -2> 2010. 2016 2017. 2001 1 2010 1.
,, < -3> 2010.
< -2>. < -2> 29 (45.3%) 24 (37.5%), 5 (7.8%), 3 (4.7%), 2 (3.1%), 1 (1.6%). 13 11. 5 6 4. 0 0 2 1 0 0 0 0 0 0 0 (0.0) (0.0) (3.1) (1.6) (0.0) (0.0) (0.0) (0.0) (0.0) (0.0) (0.0) 0 0 9 8 3 3 2 1 1 1 1 (0.0) (0.0) (14.1) (12.5) (4.7) (4.7) (3.1) (1.6) (1.6) (1.6) (1.6) 0 1 12 4 1 1 4 0 0 0 1 (0.0) (1.6) (18.8) (6.3) (1.6) (1.6) (6.3) (0.0) (0.0) (0.0) (1.6) 0 0 0 1 0 0 1 0 0 0 0 (0.0) (0.0) (0.0) (1.6) (0.0) (0.0) (1.6) (0.0) (0.0) (0.0) (0.0) 1 1 0 0 2 1 0 0 0 0 0 (1.6) (1.6) (0.0) (0.0) (3.1) (1.6) (0.0) (0.0) (0.0) (0.0) (0.0) * 0 0 0 0 1 0 0 0 0 0 0 (0.0) (0.0) (0.0) (0.0) (1.6) (0.0) (0.0) (0.0) (0.0) (0.0) (0.0) (%) 1(1.6) 2(3.1) 23(35.9) 14(21.9) 7(10.9) 5(7.8) 7(10.9) 1(1.6) 1(1.6) 1(1.6) 2(3.1) * (%) 3 (4.7) 29 (45.3) 24 (37.5) 2 (3.1) 5 (7.8) 1 (1.6) 64 (100.0) < -3>. < -3> 26(40.6%), 38 (59.4%). 20, 6 17, 4, 10, 2, 5. ( 18 ) 13..
1 1 18 1 3 0 2 0 0 0 (1.6) (1.6) (28.1) (1.6) (4.7) (0.0) (3.1) (0.0) (0.0) (0.0) 0 (0.0) 20(31.3) 4(6.3) 2(3.1) 0(0.0) 1 (1.6) 5 (7.8) 13 (20.3) 4 (6.3) 5 (7.8) 5 (7.8) 1 (1.6) 1 (1.6) 6(9.4) 17(26.6) 10(15.6) 5(7.8) 1 (1.6) 0 (0.0) 26 (40.6) 2 (3.1) 38 (59.4) (%) 64 (100.0) < -4> < -5>. 26 18 69.2%. 3 (11.5%), 2 (7.7%). 5 (19.2%) 4 (15.4%), 3 (11.5%), 2 (7.7%). 2 1 (,,, 2018) (,, 2014).,,.,. 0 (0.0) 0 (0.0) 0 (0.0) 0 (0.0) 0 5 0 0 0 1 0 0 0 0 (0.0) (19.2) (0.0) (0.0) (0.0) (3.8) (0.0) (0.0) (0.0) (0.0) 0 3 1 1 0 0 0 0 0 0 (0.0) (11.5) (3.8) (3.8) (0.0) (0.0) (0.0) (0.0) (0.0) (0.0) 0 4 0 0 0 1 0 0 0 0 (0.0) (15.4) (0.0) (0.0) (0.0) (3.8) (0.0) (0.0) (0.0) (0.0) 0 2 0 0 0 0 0 0 0 0 (0.0) (7.7) (0.0) (0.0) (0.0) (0.0) (0.0) (0.0) (0.0) (0.0) (%) 6 (23.1) 5 (19.2) 5 (19.2) 2 (7.7) 18 (69.2)
( ) 0 (0.0) 1 (3.8) 0 (0.0) 1 (3.8) 0 3 0 0 0 0 0 0 0 0 (0.0) (11.5) (0.0) (0.0) (0.0) (0.0) (0.0) (0.0) (0.0) (0.0) 0 0 0 2 0 0 0 0 0 0 (0.0) (0.0) (0.0) (7.7) (0.0) (0.0) (0.0) (0.0) (0.0) (0.0) 1 1 0 0 0 0 0 0 0 0 (3.8) (3.8) (0.0) (0.0) (0.0) (0.0) (0.0) (0.0) (0.0) (0.0) 1 18 1 2 0 2 00 0 0 0 (3.8) (69.2) (3.8) (7.7) (0.0) (7.7) (0.0) (0.0) (0.0) (0.0) (%) 3 (11.5) 3 (11.5) 2 (7.7) 26 (100.0) < -5>. 38 18 47.4%. 13 (34.2%) 4 (10.5%), 1 (2.6%). 6 (15.8%), 5 (13.2%), 4 (10.5%).,,,,,,.,. 0 0 0 5 2 2 2 1 1 0 0 (0.0) (0.0) (0.0) (13.2) (5.3) (5.3) (5.3) (2.6) (2.6) (0.0) (0.0) 0 0 0 2 0 2 0 0 0 0 0 (0.0) (0.0) (0.0) (5.3) (0.0) (5.3) (0.0) (0.0) (0.0) (0.0) (0.0) 0 0 0 1 0 0 0 0 0 0 0 (0.0) (0.0) (0.0) (2.6) (0.0) (0.0) (0.0) (0.0) (0.0) (0.0) (0.0) 0 0 0 2 1 0 1 0 0 0 0 (0.0) (0.0) (0.0) (5.3) (2.6) (0.0) (2.6) (0.0) (0.0) (0.0) (0.0) 0 0 1 2 0 1 0 0 0 1 1 (0.0) (0.0) (2.6) (5.3) (0.0) (2.6) (0.0) (0.0) (0.0) (2.6) (2.6) (%) 13 (34.2) 4 18 (10.5) (47.4) 1 (2.6) 4 (10.5) 6 (15.8)
( ) 0 0 3 0 1 0 1 0 0 0 0 (0.0) (0.0) (7.9) (0.0) (2.6) (0.0) (2.6) (0.0) (0.0) (0.0) (0.0) 0 1 1 1 0 0 1 0 0 0 1 (0.0) (2.6) (2.6) (2.6) (0.0) (0.0) (2.6) (0.0) (0.0) (0.0) (2.6) 0 1 5 13 4 5 5 1 1 1 2 (0.0) (2.6) (13.2) (34.2) (10.5) (13.2) (13.2) (2.6) (2.6) (2.6) (5.3) (%) 5 (13.2) 5 (13.2) 38 (100.0),,. < -6>. < -6> 34 (53.1%) 24 (37.5%). 5 (7.8%). * (%) 0(0.0) 24(37.5) 34(53.1) 5(7.8) 64(100.0) *, < -7>. < -7> 58 28 (43.8%) 19 (29.7%), 5 (7.8%). 3 (4.7%).
* ** *** **** (%) 19(29.7) 5(7.8) 28(43.8) 3(4.7) 3(4.7) 5(7.8) 64(100.0) * ** ( :,, ) *** ****, < -8>. < -8> 20 21 (32.8%) 2-30 19-50 11 (17.2%). 15 (23.4%). 20 * ** *** 21(32.8) 11(17.2) 0(0.0) 11(17.2) 15(23.4) 5(7.8) 64(100.0) * : (20-30 ), (40-50 ), (19-50 ) ** 19 ***, < -9>. 64 ( :, ) 28 (43.8%) ( : ) 18 (28.1%), ( : ) 10 (15.6%). ( :, ) 16 (25.0%), ( : ) 6 (9.4%), 2 (3.1%). 1 (,,, 2017) 1 (,,, 2012).,,,,,,,
.,,,. 1 0 4 0 2 0 2 0 0 0 1 (1.6) (0.0) (6.3) (0.0) (3.1) (0.0) (3.1) (0.0) (0.0) (0.0) (1.6) 0 0 0 9 1 3 2 1 1 0 1 (0.0) (0.0) (0.0) (14.1) (1.6) (4.7) (3.1) (1.6) (1.6) (0.0) (1.6) 0 0 0 3 1 1 1 0 0 0 0 (0.0) (0.0) (0.0) (4.7) (1.6) (1.6) (1.6) (0.0) (0.0) (0.0) (0.0) 0 1 19 2 2 1 2 0 0 1 0 (0.0) (1.6) (29.7) (3.1) (3.1) (1.6) (3.1) (0.0) (0.0) (1.6) (0.0) 0 1 0 0 1 0 0 0 0 0 0 (0.0) (1.6) (0.0) (0.0) (1.6) (0.0) (0.0) (0.0) (0.0) (0.0) (0.0) 1 2 22 14 7 5 7 1 1 1 2 (1.6) (3.1) (34.4) (21.9) (10.9) (7.8) (10.9) (1.6) (1.6) (1.6) (3.1) (%) 10(15.6) 18(28.1) 6(9.4) 28(43.8) 2(3.1) 64 (100.0)... 64 2010,.... 20..., 2010 2015 11 2016
. 2016, (2017). 2015 (2014) 2016. 2015..,,,,...., (,, 2017). (, 2011;, 2012;,,, 2017). (, 2015) (,, 2011) (,,, 2017)....,,,.,, 20 30~50..,
. (,, 2013;, 2013) (,,,, 2012). (,, 2010) (, 2011a;, 2010).,..,,,., 37.5%. 1. (,, 2013;, 2012) (,, 2012;,, 2010)..,,,.. -,,..
, (2017).. (1), 199-222. (2011).. 237-259.,, (2012).. 171-189., (2009).. (2), 199-223. (2016).. (4), 1-25., (2013).. (1), 71-101.,, (2017).. (3), 75-94. https://doi.org/10.24159/joec.2017.23.3.75 (2017).. (2), 51-76. (2011). : (3), 471-484.., (2013).. (3), 333-356. (2015). :. (2), 463-490., (2012).. (3), 279-295., (2013).. (3), 381-407. (2014). :. (1), 1-21.,,, (2012).. (2), 141-175. (2012). :. (2014).. (1), 87-120. (2013).. (2), 1-24., (2010)..
(4), 439-447., (2016).. (1), 43-64. http://dx.doi.org/10.16884/jrr.2016.20.1.43,, (2015).. (2), 169-186., (2012). ADHD. (3), 219-239., (2015).. (10), 349-366. (2015). - -. 5-27., (2017).. (4), 61-90. http://dx.doi.org/10.16884/jrr.2016.20.1.43, (2016).. (6), 334-344. http://dx.doi.org/10.16884/jrr.2016.20.1.43, (2011).. 27-49.,, (2016).. 261-304., (2010).,,. (2), 85-104. (2012). :., (2014). :. (3), 69-92. (2010).. (2), 243-263.,, (2017). :. (4). 75-104. https://doi.org/ 10.26857/JLLS.2017.11.13.4.75 Gray, D. E. (2006). Coping over time: the parents of children with autism. Journal of Intellectual Disability Research, 50(12), 970-976. https://doi.org/10.1111/j.1365-2788.2006.00933.x Mu, P. F. (2006). Transition experience of parents caring of children with epilepsy: A phenomenological study, International Journal of Nursing Studies, 45, 543-551. Wikler, L. (1981). Chronic stresses of families of mentally retarded children. Family Relations, 30(2), 281-288.
<> (2012).. (2), 1-21. (2011a).. 237-259. (2011b).., 39-63. (2011c).., 369-390.,, (2012).. 171-189., (2015). :., 99-118. (2004). : 1980. (4), 271-296., (2015).. (4), 315-336. http://dx.doi.org/10.19049.jsped.2015.16.4.13, (2016).. (1), 35-56., (2016).. (4), 79-100.,, (2015).. (1), 125-150. http://dx.doi.org/10.16884/jrr.2015.19.1.125 (2015). ( ). (3), 83-108. (2017).. (2), 51-76.,, (2010).. (4), 1213-1223., (2008).. (4), 245-276., (2017).. (1), 91-113. http://dx.doi.org/10.20971/kcpmd.2017.60.1.91,, (2002)..
(1), 177-198. (2002).. 133-144.,, (2015).. (3), 127-150., (2011).. (1), 25-35., (2005).. (1), 17-31.,,, (2012).. (2), 141-175., (2008).. (4), 213-244. (2000).., 106-130. (2001). :. (3), 443-451., (2010).. (4), 439-447.,, (2016).. (3), 225-249. (2013).., 1-23., (2013).., 307-327., (2016).. (1), 43-64. http://dx.doi.org/10.16884/jrr.2016.20.1.43 (1998).. 59-84. (1999).. 165-195. (2001). :. 59-88., (2010).. (4), 247-276., (2015).. 29-48.,, (2016). (1),
. (1), 129-151. http://dx.doi.org/10.15861/kjse.2016.51. 1.129 (2015).. (2), 147-177., (2016).. (1), 133-150., (2014). : Q. 143-166., (2012). ADHD. (3), 219-239., (2015).. (10), 349-366. (2015). - -. 5-27.,,, (2013). :. (3), 175-205.,, (2018).. (2), 45-78. http://dx.doi.org/ 10.20971/kcpmd.2018.61.2.45, (2016).. (6), 334-344. http://dx.doi.org/10.16884/jrr.2016.20.1.43, (2014).. (1), 53-78., (2017). :,. (4), 27-50. http://dx.doi.org/10.21321 /jfr.21.4.27,, (2016). :,,. 217-244., (2013).. (3), 263-285., (2015). :. (3), 227-252.,,, (2018).. (1), 333-359. http://dx.doi.org/ 10.21024/pnuedi.28.1.201803.333
,, (2017).. (4), 289-326. http://dx.doi.org/10.19049/ JSPED.2017.18.4.12, (2018).. 81-112.,, (2016).. 261-304., (2013).. 287-316. (3),,,, (2014).. (1), 245-281., (2014). :. (1), 215-239. (2006). :. 5-42.,,,, (2017).. 103-129. http://dx.doi.org/10.15300/ jcw.2017.61.2.103, (2014). :. (3), 69-92. (2008a).,. (1), 89-112. (2008b).. (1), 151-167. (2010).. (2), 243-263.,, (2017). :. (4). 75-104. https://dx.doi.org/ 10.26857JLLS.2017.11.13.4.75, (2016).. (2), 191-211. http://dx.doi.org/10.15820/khjss.2016.42.2.009 : 2018.11.07. / : 2018.11.12. / : 2018.12.20.
:. : 2 64.,,,,,. : 2010,.... 20.. :.